East Of Eden

"A curious mix of the relevant and reverential"


What to expect when you're expecting...

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September 2016, and I have (some) hair.

 

 

... to get better, but haven't. Yet. 

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Baby, I'm just soggy from the chemo.

 
 
On the April 12th, I underwent the first round of chemotherapy for the stem cell transplant at Northwestern. I was given a rather large, private room, complete with a spectacular view of the Chicago skyline and a large flatscreen TV that I never used on account of the fast hospital WIFI and having my laptop with me. 
 
The nursing staff was nice. Friendly, chatty even, but not too talkative. They knew when to take a bow. 
 
They were quick to provide me with Zofran to combat the nausea from the Cytoxan. Sidebar, but isn't Cytoxan such an appropriately awful name for chemo? Cy-TOX-an? Toxic toxin. Eww. Anyway, they also gave me Mesna and Lasix, which left me having to pee pretty much every ten minutes for a couple of hours each time I was dosed. And of course, every time I went, I was accompanied by my beeping, infusing buddy, large IV stand, pictured below in the background.

 

Yes, I still maintain my hippie style even at the hospital.


The actual chemo infusion went fine, but the stay overnight was rough. I couldn't sleep, which is totally normal for many hospital patients. But what did me in was an overwhelming, almost to the point of smothering, feeling of loneliness. There was a pull out bed in my room, but it was empty, with K being back at the hotel with Zoe. We spoke via FaceTime... or rather, barely spoke, an awkward silence doing most of the communicating for us both. The day, with it's heavy anxiety, had left us both stunned and stung.

At some point in the wee hours, my night nurse, Maria, checking on me during a pee run, noticed my sadness, and offered up some words of encouragement. Somehow our small talk turned to God, and with a thick Filipino accent, she shared how she prays for each one of her patients at the start of every shift, asking God to help her be an instrument for Him.

Still lacking words, I gave her a hug, me still tethered to old large IV stand, her in crinkly, blue, antiseptic gown and latex gloves.

I got home the following afternoon feeling surprisingly well. I had made several stops after being discharged to buy flowers (white lilies and pink daises) for our hotel room (really more of a studio apartment with a full kitchen) and to pick up the prescriptions I'd need for the next week.

Things were still awkward between me and K, but Zoe greeted me as if we had been separated for months. As the hours passed, I fell into a daze of exhaustion, finally conking out before 8PM. Around 2AM, I awoke to what felt like an actual wave of nausea. For the next 36 hours, that wave would submerge me into some kind of hellishness akin to labor pains, premenstrual cramps, and the most severe stomach virus ever... combined. I'd pop a Zofran, which, as far as life preservers go in an ocean of nausea, kept me afloat, but most certainly didn't save me. Food was a step away from gross. I wasn't even too keen at looking at it.

The only thing I wanted to see was my family. In fact, from my groggy, soggy chemo haze, laying in bed, I set my gaze on K and Z. It didn't take long for them both to question my stares. I mumbled out how much I missed them. Zoe shrugged, laughed and went back to watching TV. K met my stare with a look that crossed incredulity with being weirded out.

Again, I felt stung.

I had been warned that this process would leave me physically depleted. There were no side effect warnings for my emotions.


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I am not my hair.

 

 
"Breast cancer and chemotherapy
Took away her crownin' glory
She promised God if she was to survive
She would enjoy every day of her life, oh
On national television
Her diamond eyes are sparkling
Bald-headed like a full moon shining
Singing out to the whole wide world like, hey"
- India Arie, "Brown Skin"
 
On Wednesday evening, I walked into the bathroom, slid open the medicine cabinet, pulled out a small pair of scissors and paused for about five seconds. I took a deep breathe and cut a large hunk of my hair off on the left side. In less than ten minutes, the sink was full of fro. I was done.
 

 

 
I had decided a long time ago that I'd rather get a hair cut before receiving the chemotherapy that is part of the complex Hematopoietic Stem Cell Transplantation. The staff at Northwestern Memorial let me know from the jump that I'd lose all my hair. Unlike with many chemo treatments prescribed for patients with cancer, the use of chemo here will be so intense that the hair wouldn't just thin. I'd look like a honey brown cue ball within two months. No ifs, ands or combovers.Not wanting to resemble a 2016 female version of George Jefferson when clumps of my afro begin to drop out, I planned to go to a salon and get my first real, professional haircut since college.
 
But plans have been failed aspirations lately, and with less than a week before I'd be back in Chicago to finally get the transplant, and not wanting to spend any additional cash on strands that wouldn't be around to greet the Summer Solstice in a couple of months anyway, I got my Edward Scissorhands on. 
 
Zoe doesn't like it. Not in the least. She wants my "old, better hair style back". K... well, he's said he likes it, but only did so after I asked him straight out. So, yeah. 
 
I like that I haven't had to do it since I washed and styled it that first night. But I feel a little... I'm not even sure. Unfazed? I thought I might've gotten a bit moved by it all. I now have the shortest hair in the house.
 
My husband, with his shaved, two-strand twisted fauxhawk, has longer hair than me. And still, my emotional reaction could be depicted like this emoji. 
 
I've thought about it and I truly believe going natural while pregnant with Zoe pretty much took the sting out of this. I heard some of the nastiest comments when I let go of the relaxed locks. My appearance, value, sexual appeal and femininity were all questioned and even ruled quite lacking based on the texture of my hair. Why worry now when I barely have any? In those people's eyes, I've been ugly. 
 
I cried then, but their taunts toughened me. There I was, in my last year of my 20's FINALLY getting it. My value is not in my appearance, and certainly not in the capricious opinions of others on said appearance. As India Arie sings, I am not my hair. I'm not my skin, either. I learned that lesson quite well as I got scar after scar from IVIG treatments, medicines, and surgically implanted ports. 
 
I don't have breast cancer, but like the woman in India's song, I've done my praying and have decided to enjoy each day, "Bald-headed like a full moon shining".
 
 
 
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The fault in my stars.

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I've never been into astrology.

 

Not just because I was raised that in fell into the category of the "occult" and was not to be dabbled in, but because it made very little sense to me. At least the way it was told to me, that your life was predetermined based on your birthdate and what type of moon and stars you were born under. So everyone with the same birthday should have the same exact horoscope, the same personality type, the same predilections in love?

 

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